Welcome to Zayden's Journey Blog
Join us on a journey through the challenges and triumphs of living with Congenital Myotonic Dystrophy Type 1. Discover the realities faced by those with this rare genetic disorder and their families.
Resources:
Informational web sites:
https://www.mda.org/disease/myotonic-dystrophy/signs-and-symptoms/adult-onset-DM
https://www.myotonic.org/
https://www.musculardystrophyuk.org/conditions/a-z/myotonic-dystrophy/
https://www.mda.org/disease/myotonic-dystrophy
https://medlineplus.gov/genetics/condition/myotonic-dystrophy/
https://my.clevelandclinic.org/health/diseases/24516-myotonic-dystrophy-dm
https://www.nhsinform.scot/illnesses-and-conditions/brain-nerves-and-spinal-cord/muscular-dystrophy/myotonic-dystrophy/
https://www.hopkinsmedicine.org/neurology-neurosurgery/specialty-areas/muscular-dystrophy/myotonic-muscular-dystrophy
https://rarediseases.org/rare-diseases/dystrophy-myotonic/
https://www.ncbi.nlm.nih.gov/books/NBK557446/
https://www.genome.gov/Genetic-Disorders/Myotonic-Dystrophy
Support Groups
Adaptive Devices and Equipment,
shoes, AFOs, chairs, medical strollers, medical car seats, etc.
https://billyfootwear.com/products/black-graffiti-billy-classic-d-r-ii-high-tops
https://www.fphcare.com/us/hospital/adult-respiratory/optiflow/airvo-2-system/
https://adaptiveimports.com/product-category/hoggi/
https://www.thomashilfen.us/axkid-nextkid-reha-us
https://www.inspiredbydrive.com/product/p-pod/
https://www.arktherapeutic.com