On Wednesday, we met with Zayden's nutritionist to discuss his needs, as his growth has slowed. She recommended transitioning him to a toddler formula and reassured us that she's not overly concerned about the dip in his growth chart. This kind of slowdown is common for kids recovering from ventilator support. For now, we’ll give it some time and monitor how Zayden adapts to the changes.
We're also facing challenges with some of Zayden's doctors who haven’t responded to the paperwork required by the DME company to get his medical equipment approved through insurance. The insurance company demands additional letters and forms, but getting them signed has proven to be an ongoing struggle.
Zayden needs assistance with bathing, and a specialized Oca tub with a Penguin seat would be ideal for him. The equipment is ready and waiting, but insurance won’t approve it without a doctor’s signature. We’ve sent the necessary forms to two doctors, but neither has responded. Additionally, Zayden requires tools to help him build strength in his body and head to practice crawling. A Creepster crawler would be perfect for this, but just like the Oca tub, it’s stuck in limbo because the DME company can’t proceed without signed paperwork from his doctors.
It’s incredibly frustrating that what should be routine tasks turn into endless delays. I understand that doctors have busy schedules, but it’s disheartening when Zayden’s therapist emphasizes the importance of him working on specific skills, and we can’t move forward because we’re stuck waiting. The insurance company demands documentation, the doctors don’t respond, and we’re left chasing signatures while Zayden waits. The DME reps and I take on most of the workload—researching equipment, coordinating contracts, drafting letters—but everything comes to a standstill without the necessary approvals. This process often drags on for months, leaving me frustrated and, at times, forcing me to demand answers. It’s not a situation anyone wants to be in.
It’s exhausting and unfair that families like ours have to fight so hard just to secure basic necessities like medical equipment, supplies, or even formula changes. Some of Zayden’s needs have been stuck in limbo for months. Every time we feel like we’re making progress, another obstacle arises because someone hasn’t followed through.
So, today, I’ll be back on the phone, chasing down answers yet again. Despite multiple messages from both me and the DME representatives, we’re still being ignored. This constant battle is draining, but I’ll keep pushing forward for Zayden.
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