Introducing Zayden's Crusade Foundation
Zayden's Crusade Foundation is a non-profit organization dedicated to supporting families affected by Myotonic Dystrophy, particularly those who struggle to access the resources they need. Our mission is to streamline access to critical services and programs throughout Florida. By developing a comprehensive catalog, we aim to clearly outline what resources are available, along with their requirements and restrictions. This will save families time and frustration, helping them avoid the endless cycle of being referred from one agency or charity to another without finding meaningful solutions. Additionally, we strive to foster partnerships between local businesses and existing programs to address significant gaps in available support.
Honoring Zayden's Legacy
The foundation is named in honor of my grandson, Zayden, who was our brave "little dragon slayer." Despite his short 18 months of life, he fought valiantly against Congenital Myotonic Dystrophy Type 1. During this time, our family experienced firsthand the challenges of navigating an uncoordinated system with limited resources. From a lack of critical supplies and equipment to the frustration of redundant or overlapping services, we constantly faced significant obstacles. When our vehicle—essential for Zayden's medical transportation—broke down, we were told repeatedly, "There are no resources available in your rural county." The absence of meaningful support left us feeling helpless during an already difficult time.
Our Vision for Change
Our citizens deserve better. Our communities deserve better. Most importantly, our special needs population deserves better. Zayden's Crusade Foundation is committed to bridging these gaps and ensuring that no family has to endure the same struggles we did. Together, we can create a more supportive, collaborative, and compassionate system for all.
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