Welcome to Zayden's Journey with Myotonic Dystrophy Type 1

Join us on our family’s heartfelt journey as we navigate the challenges and celebrate the triumphs of living with Congenital Myotonic Dystrophy Type 1, through Zayden's inspiring story. Together, let's raise awareness, foster understanding, and advocate for the vital changes needed to improve the lives of those impacted by this rare genetic disorder—affecting 1 in every 8,000 births—and their families who face its life-changing effects every day.

Frustrated and Losing Hope !

18 Aug 2025 20:35

Asking for Help from Chrysler Corporation

17 Aug 2025 10:41

Dear Mr. ,

Positives that are Sometimes Outweighed by the Craziness Part 2

15 Aug 2025 07:42

Positives that are Sometimes Outweighed by the Craziness part 1

14 Aug 2025 07:43

A Rough couple of weeks

2 Jul 2025 13:30

Upcoming Excitement

30 Jun 2025 06:43

I am 1 years old now, watch me go!

11 Jun 2025 08:14

Work Ethics leave a lot to be desired

1 Jun 2025 23:44

My new Adventures

29 May 2025 11:01

Juggling Every day

27 May 2025 09:08

#GovernorSantis

Daily Tasks are Never Ending

14 May 2025 19:31

You're paid to provide a critical Service, DO IT correctly!!!

9 May 2025 18:45

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About us

Welcome to our blog, where we share Zayden's personal journey with Myotonic Dystrophy Type 1. Our goal is to provide meaningful insights, resources, and support for individuals and families navigating life with this rare genetic disorder, which affects approximately 1 in 8,000 births. Together, we aim to foster a compassionate community, raise awareness, and advocate for increased research and understanding.