Welcome to Zayden's Journey with Myotonic Dystrophy Type 1

Join us on our family’s heartfelt journey as we navigate the challenges and celebrate the triumphs of living with Congenital Myotonic Dystrophy Type 1, through Zayden's inspiring story. Together, let's raise awareness, foster understanding, and advocate for the vital changes needed to improve the lives of those impacted by this rare genetic disorder—affecting 1 in every 8,000 births—and their families who face its life-changing effects every day.

About us

Welcome to our blog, where we share Zayden's personal journey with Myotonic Dystrophy Type 1. Our goal is to provide meaningful insights, resources, and support for individuals and families navigating life with this rare genetic disorder, which affects approximately 1 in 8,000 births. Together, we aim to foster a compassionate community, raise awareness, and advocate for increased research and understanding.